LMS is for life. Those people who recover well from first surgery and never have a recurrence will nonetheless be monitored closely for at least five years, and then at least annually thereafter.

If you join those of us who have recurrence the visits to hospital will become a regular feature of life - whether for treatment or for monitoring.  It would be easy to get depressed, the prospects are not helped by the over-crowded nature of so many UK hospitals brought about by decades of under-investment. 

There are many people who believe that survival is as much in the mind as in the treatment. After two major surgeries and a full course of Ifosfamide I feel in good health. I have not asked for a 'prognosis' - for an estimate of how long this will all go on.  My view is that life is for living. I also believe that information empowers me and enables me to discuss my disease with the consultant from a position of knowledge. I enjoy those discussions, although I look forward to the day when we have them less frequently.
